It has been quite a while since I've blogged. I blame it on moving, RA pain, fatigue, and a bit of laziness and bad attitude. As many of you know, I recently had to move. I have gone from a 3 bedroom home to squeezing myself and my belongings into one bedroom... Not easy and not fun. I sold many of my belongings and have given away almost just as much. I have some boxes being stored also. All of that and I still have a garage to go through and decide what I want to do with all that is in there. I'm waiting until after the holidays to tackle that project.
I have moved in to my sister's place and things are going well so far. We spent Thursday decorating for Christmas and doing things around the house. That has helped to lift my spirits! Nothing worse than a gloomy Christmas. We were supposed to go out to dinner on Friday to have Spanish tapas and enjoy live Flamenco music but my sister caught a bad cold, and I had a really crappy and frustrating day, so we put it off for a week. Hopefully we'll go this Friday! I want to get some nice pictures.
Some really great news! I got approved for the Actemra! I will begin my first infusion on December 30th which just happens to be my birthday... I could think of better ways to spend my birthday than sitting in a room with an IV in my arm, but hey, it's a good thing! My doctor said that many people start seeing improvement after the first infusion. Wouldn't that be wonderful?! I'm keeping my fingers crossed. Well, I'm crossing them figuratively... I really hope this is the treatment that helps!
I am trying to change my outlook on life. Sure I have bad days when I don't want to be around many people, but I'm hoping to find more positivity in life. Keep the friends that make a difference, make new friends that inspire, and let go of the negative people in my life. Find activities that make me happy, and do more things that make a difference for the better in my life and others! Oh, and have a few cocktails in between!! hee-hee!
Christmas is just 12 days away! Happy Holidays to each of you!
My meds have failed once again so I understand and appreciate your attempt to move beyond the frustration of the disease. Good for you for picking yourself up in spite of it. I am awaiting enbrel news. My doctors are trying to get through the red tape now to approve me. Otherwise, I shutter to think what will come of this. My hands are so stiff and swollen it makes it hard to complete tasks. I'm still moving forward in spite of it but there are days when all hell hits harder than I'm ready for. Chin up and I pray for better days for all of us. Hugs.Tammy
ReplyDeleteI can relate to how you feel. I've been on 3 different biologics with none of them working... It can really get you down. I'm not sure how I'll feel if this one doesn't work.
ReplyDeleteI hope things go well for you and you can get on Enbrel!
Thats great news that you are approved for Actemra. I would just look at the infusion as a birthday present that was going to help me feel better. I have done Orencia infusions and its really painless.
ReplyDeleteSounds like you have a good plan in place, just stick to it. Have a Merry Christmas and a happy infusion!
Great to hear that the move is over and the med.s were approved. Here's hoping they bring incredible relief and your new year is off to a great start!
ReplyDeleteThanks everyone. I'm back to blogging again. I was a bit down in the dumps for a bit, but things are getting better!
ReplyDelete